Sjögren's Syndrome Insights

Sjögren's FoundationApr 28, 2025

Sjögren's is a serious, systemic, and complex disease that is still under recognized. 79% of Sjögren's patient say living with Sjögren’s makes every day a challenge. Despite that, 69%

say they are still able to live a fullfilling life despite their disease.

#ThisIsSjögrens

Sjögren's FoundationApr 25, 2025

Debra

'I will say this, through counseling, I learned that I am morning my former life and trying to navigate my new life with Sjögren’s.

Thankfully my spouse is an Optometrist. I didn’t even know what Sjögren’s was. When I was diagnosed it was the first time I heard of it. My husband knew all about it. He is very supportive and has treated Sjögren eye related issues for years. He also knows the struggles patients endure trying to get the right diagnosis. He has actually related to me that on a particular day that he had a patient that sounded exactly like me, trying to navigate all of the symptoms and just find the right combination of therapies to get relief and try to lead as best of a normal life as possible.

Take a breath … this disease is chronic. It is manageable. Listen to your body, you now have limitations. Over doing or over stressing will lead to symptom onset. Educate those that are closest to you. Print the human body diagram that the Sjögren’s Foundation has on their site. Give it to everyone that you think needs education about the disease. It is a systemic disease, that seems to have a mind of its own. You never know when it will affect a body's systems. Seek a good Rheumatologist, one versed in Sjögren’s. Understand your PCP is most likely limited in their knowledge of the disease. You may be tasked with educating them as well. I learned, in case this disease has debilitated you, that it is recognized by Social Security as a disability. Lastly, you are not in this alone, seek support, whether it be counseling, support groups, education is also key. You are not a hypochondriac your symptoms are real!'

To learn more of Debra's story click the link below:

https://sjogrens.org/awareness-stories

#ThisIsSjögrens

Beyond Sjögren'sApr 24, 2025

What is really possible when it comes to improving health and symptoms with Sjögren's?

Over the past few years, we’ve had the privilege of supporting dozens of people with Sjögren’s - and we’ve seen firsthand that while there’s no quick fix, progress is absolutely possible.

In this post, we’re sharing 5 key lessons that we have learned from those who have seen meaningful improvements to their health and symptoms, so you can take these insights and apply them to your own journey too.

⬆️ Tap through to learn what has helped others feel better with Sjögren’s, and how it might help you too.

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💡 Want to learn more?

We have launched a course to help people with Sjögren’s improve their health, through Sjögren’s-specific diet, supplement, movement, stress and sleep recommendations and much more.

Follow the link in bio or comment 'COURSE' for more.

Use code "awareness10" at checkout for 10% off the course price. Available until the end of April.

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